PHI news
The article discusses the challenges and frustrations surrounding Long COVID research in the United States. Despite substantial investments and numerous research efforts, progress in understanding and treating Long COVID has been slow and disappointing. Experts and patient advocates have criticized the research community for its focus on disease development rather than direct patient care, duplication of studies, and a lack of clinical trials. The authors propose a new hypothesis that Long COVID may be a form of post-infectious syndrome or chronic fatigue syndrome, suggesting that traditional biomedical research approaches may not yield meaningful results. Instead, they advocate for a shift towards health services research and measures that directly impact patients’ welfare, including prevention, improved prognosis, access to empathetic care, and quality of life issues. They emphasize the need for collaboration between researchers, patients, and advocacy groups to reset the research agenda effectively.
Resource Details
- Setting/Context of Implementation: Clinical|Community
- Topics of Practice: Organizational Change/ Development|Policy Change/ Development
- Outcomes of Interest: Capacity Building
- Level of Evidence: Emerging
- Tools or Materials Included in Resource: No
- Social Determinants of Health: Healthcare Access and Quality|Social and Community Context
- Outside of US: No